Data Access

Learn about the steps for external research teams to access PdP data below. For additional details about the cohort and the collected measures, please refer to our protocol paper.

How to Access the Data

1

Inquiry & Feasibility

Connect with the team to express interest in accessing study data. A member of the research team will review and determine fit of research project.

Submit an Inquiry

2

Data Access & Request

Complete and submit the Data Access & Request Form provided by the team. You will be asked to provide a research proposal and specify:

* Rationale for secondary data use

* Research question(s)

* Proposed research and statistical methodologies

* Expected outcomes

* Possible impact of results

* Knowledge translation plans

* Access to funding (where applicable)

3

Data Agreements

Prior to data being transferred, the following is required:

* Approval from appropriate research ethics board

* Signed confidentiality agreement from all project, collaborators accessing the data

* Signed data agreement

4

Data Transfer

Data and/or research materials are shared through secure transfer.

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